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Wednesday, March 3, 2010

Just a little update

So I have not updated since Kaesyn was pretty much diagnosed. Not a lot has been going on really. Kaesyn still wheezes, still coughs, still has low oxygen more than he has high levels. I finally found a few more parents that have children with the condition, however it I have not found it to be anymore common than I thought. Some Drs say its more common than I think, some say its not. So I guess it depends on the Dr and how many patients they have had with the condition. I got to talk more to Dr.Escobar (Kaesyns pulmonologist) about the condition. He classifies Kaesyns specific case inbetween moderate and severe. He is confident he will grow out of it eventually, which is usually true, its just hard for me to have faith of that, since Kaesyn has not shown any signs of getting better. I think that he still has some of the bronchitis left as he still wheezes from his lungs (not just the stridor(noisy breathing) Dr.Escobar, said no daycare for Kaesyn, it would be pointless due to him picking up any little virus, and it would make him a lot more sick than it would a "normal" child. Which is true, he has had bronchitis for over two months, if he was in daycare and I was working there would be no way any job would let me off for two months until Kaesyn got better. So for now, it is rough, but I am totally loving that I can stay home. While I am able to stay home I am finishing my highschool diploma online, and will soon be starting a technical school program online as well. Kaesyn is very well behaved and listens soo good while doing school work. Grandma will be home this coming Saturday after being gone to California for over two months. Its been a tough one doing ALL of this by myself, Thanks to some Great friends for helping me all they can!!! It was really hard going through Kaesyns broncoscopy and CT scan with no one to be there for me. I have definely learned how much strength I have, as well as Kaesyn. He has been such a trooper through all of this. He now knows when he is ready for a breathing treatment. I can hear his stridor getting a little noisier and he will come crawl into my lap for a breathing treatment and oxygen check. He is a pretty tough little man. He also has to see a neurologist due to his head circumfrance growing at a different pace. The neurolgist is sure that everything is fine, but will be repeating a CT scan of his head March 23 just to compare it to the one we did last year. This will be his 3rd CT scan. He sure has been through a lot. Gabby has held up through all this great as well. She has had to spend a few nights in the hospital with us, and she has done GREAT. She worries about her baby brother, which I hate having to put her through. She has missed a lot of school, and a lot of school activities, it upsets her but she understands. She has a hard time understanding that, he really does not have asthma, that he has a different condition. So everytime someone comes and talks to us in the store (random strangers.) she will let them know her baby brother has asthma, and they always wish him well..lol. Thats all for now, Thank you again everyone for your support, and prayers!!!! We are lucky to have so many people that love and care about us!!!

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