A lot has happened since my update Sunday, and its ONLY TUESDAY! Sunday afternoon during Kaesyns nap his oxygen went way too low for my comfort. I called the hospital, and we all decided that that night I would bring him up to be admitted, so we could get him qualified for home oxygen. Of course that night it went low and our Respitory Therapist,Karen, got him qualified and we had oxygen at home the very next day. Without her we would not have been able to get it so quick,and maybe not even at all! So Kaesyn now has oxygen at home, which is soo comforting. Last night was our first night with it, it is really hard to put the nose piece in, I figured when he was asleep hed never know, yeah right! He woke up screaming! So we just had to do a blow by, which did not help his oxygen go up. His pulmonolgist called and said that if I Can not get it to come up at home then I need to take him to the ER. Which is really irritating, because Kaesyn will wake up, and then his oxygen wont be that low, and then what are they supposed to do? I wish I could just make an appt with Dr. Escobar tomorrow (pulmonolgist) andsit down and ask him any questions I have, but we cant do that, and if we could I will always have questions.
Today his oxygen has been GREAT, better than normal actually. But as soon as he falls asleep, it goes down as fast as I can snap my fingers. I can not wait to be done with all of this, so that my baby is able to breath better, and not get so sick all the time. I feel like this is running our life, I have to be prepared at all times to go to the hospital, I am to the point to where I have a bag packed and ready to go at any point in time. It is so hard for me to realize he is as sick as he is, and maybe we dont even have to use "sick", Im really not sure how to say it, but they don't give babies home oxygen for being healthy. If someone were to be in my position, and described the condition to me I would think of some really sick baby, but Kaesyn is not that. He is happy, he laughs almost all day long, even when he is sick, he never looks as sick as he is, so its really hard for me to grasp on to the whole thing, and to understand exactly how serious his condition really is.

So other than all that, I have noticed a lot of irritation lately when I see adults complain about simple stuff,their soar throat, there knee hurting, their whatever hurts soo bad. I see my son struggling most of his day struggling to breath, I have been in the childrens hospital where there are children that are dying, and they know they are dying, and you never see them angry, they always had a smile on their face, they never compained. Why is that? I do not understand, It has definetly made me appreciate life in a different way and has lowered my tolerance for adult complainers. I have also noticed me rolling my eyes a lot at people freaking out about coughing kids, Im not sure what to call it, but I find myself going,well damn wish my son just had a cough that will be gone in a few days, I know its not healthy to do, bc if it was me I would be freaking out about a cough as well, Im sure. I try to be positive as much as I can but there has to be a breaking point, one can only take so much and Im not sure how much I can do. Hopefully Kaesyn will get used to the nose piece for his oxygen at home, and then I will be better.It just seems like so much for someone to handle on their own, and I am not sure how I did it. Its changed my view on things A LOT for sure.

So HAPPY NEWS! Gabby lost her first tooth last night!!!! So I got to play tooth fairy!!:D She was sooo excited, I was doing homework and I hear her shrieking. I threw my laptop onthe couch and ran to her and she had blood running down her mouth, my first instinct was, WHAT HAPPENED?!? she excitedly said MOM!MOM!MOM! I LOST MY TOOTH WHILE EATING AN APPLE! I finally grasped the fact of what happened and snapped back to reality and realized what happened..lol! Then of course I started crying that my beautiful baby girl is really turning into a young lady, but she is soo wonderful, Goodness I love that girl!!:D
Well as always I will keep you all updated!