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Tuesday, June 15, 2010

neurology appointment

Kaesyns neurology appointment went okay. He explained Kaesyns situation to me. He has communicating Hydrocephalusm, also known as "nonobstructive" hydrocephalus. We mentioned Kaesyns eyes to the neuro, he was not sure what to say, other than he hopes its just "the way he looks" however he referred us to the Ophthalmology clinic so we can make sure. We are also going to a neurosurgeon just to double check their opinion on his communicating hydrocephalus. He said that the communicating hydrocephalus, is something to definetly keep an eye on, but right now he strongly believes that Kaesyn will be fine, and it does typically resolve itself. But he feels safer to get a neurosurgeons opinion. I feel that the appointment went well. He explained everything that I pretty much wanted to know clearly, he took his time to explain the CT scan. And to examine Kaesyn as well. So now its a waiting game again to see the next two specialists. Currently Kaesyn sees pulmonology,GI docs, neurology, ENT, Neurosurgeouns, and Ophthalmology. Wow, thats way too many drs for such a happy lil man. I really hope we can resolve this soon so we can move on!!! Tomorrow we see ENT to get his opinion and some his view on Kaesyns TBM! Ill update when I know SOMETHING!!! Thanks for everyones support!!

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