Wow! Its been a year and a half since I posted anything! Sometimes its hard coming back here reading what my baby has endured, and looking back on the bad, but then sometimes I need to read this to realize how lucky we are today. Kaesyn has done so great. He started pre school January of 2010 and has come so far. Every tiny mile stone is a reminded of how blessed I am. He never seizes to amaze me. Everyday is a new day and Im so blessed to have that. With that said, he has been having issues and is needing surgery. His TBM and LM have been acting up and causing a lot of issues. By no means is it as bad as before, but with ever cough I begin to worry. His o2 saturations go down to the high 80's, and his cough is horrific. As we speak right now everything is good, but that doesnt mean it will be tomorrow. About every month we deal with these with around the clock breathing treatments and steroids. Hes also been dealing with chronic ear infections again, which leads us to surgery. We switched ENTs and she decided to do another set of tubes, take his adnoids out (FINALLY!) and do a bronchoscopy.We wanted to do this ASAP, but at our pre op appointment they did not feel safe doing so because of his wheezing, so we rescheduled the end of January in hopes he will be well enough at that point to pursue it. Im anxious to see how well this helps him and what the bronch says. Because he has been MRSA and his conditions he will be considered high risk and have a special pediatric high risk infectious disease and respiratory team with him. As far as his neurological problems, we are just watching it. Sometime in early 2013 he will have another MRI (we moved them to every year, instead of 6 months!) His last MRI and EEG had some abnormalities in which are concerning but there is nothing to be doen, and because he has progressed sooo much in speech, motor, and cognitive skills we have faith that we can maintain these issues and he will be alright. Looking back 3 years from today, I am so amazed at how far he has come. I am beyond blessed to have such an amazing son who happens to be my hero, as well as his sister who has stayed strong with us for so long. It would be so easy for her to break down, and resent him for everything she has missed out on through all of this, but she hasnt. Ive said it a million times, and Ill say it again, but this road has led me to some of the most inspiring, caring friends ever. Never in my life before this have I met people willing to help out in any way we needed it whether it be a shoulder to cry on, someone to take Gabby for appointments. With all good there comes the bad, the bad comments made, the assumptions people throw at me to my face and even worse behind my back. It is hard to deal with cruel people, but the people who truly care are the people who help me pick myself up again. Thank you so much and a special thanks to my Grandparents, for always being there, no matter what, for always trying to understand my situation. To Colleen Longhi for always reaching out and educating me on these conditions. Tanya Jorgenson for becoming one of my best friends that totally gets me, and for encouraging me to always do my best,and being my rock when I absolutely need someon. Stephanie Hueston for providing all of us with such an amazing support group at CWL,and being all of our rock no matter what difficult struggle she has endured. Karen Tanking for being the best respiratory therapist we could ever have been blessed with, and for always encouraging me to follow my dreams, and being an inspiration to pursue them. For always always reminding me Im not being over reactive and lending a hand to comfort me when Kaesyn is sick. And the nurses, staff and doctors at our local family clinic and pulmonology clinic at childrens mercy. I am so glad that we have a medical team that loves and cares about both of my children and I. I am so glad that they take me serious, even though it was such a struggle at first. I know that they will never stop fighting with me. I could not have chosen a better community to live in and medical staff to go through this with us. I have learned so much, and over came so much in the last 3 years. I have grown so much as a person, mother and friend on my own sons expense. Gabby and him both have been my biggest inspiration to fulfill my dreams and remind me every single day that the three of us will over come any obstacle thrown in our way. We over came this, and even though we still have obstacles to over come with this journey, I know the worse is over, and we are on the right track to go many great places and knowing I have all these great people to walk with me makes it so much better. Heres to another year of blessings, health, success and faith.