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Sunday, December 12, 2010

All these specialists and diagnosis are driving me insane.

So we have more specialists and a few more diagnosis I cant even count either of them on one of my hands, and I always get confused.

specialists include:
Pulmonologist
ENT
GI dr
neurologist
Neurosurgeon
Dermatologist
infectious disease
cardiologist
ophthalmology

Did I get them all?I always miss one or two. Once we have Kaesyns MRI in March we will be able to scratch off the neurosurgeon/neurologist. Thats a big step! I pray with every fiber of my being we will be able to do so!!! We will also be able to scratch out the cardi also in another few months if the Dr doesnt feel the need to see us anymore! WHEW!

A current list of official diagnosises
Laryngomalacia
Tracheomalacia
Bronchomalacia
Asthma
GERD


A list of "pending" diagnosis/concerns
His antibodies are very low
We can not get his iron up for ANYTHING
They want to check the celia in his nose
spot on his brain

Sooo much for such a little man. He does so awesome though.
This week we have ENT/infectious disease appt. Hopefully we hear good news!!! Update will come later!




Peace, Love, Faith,Marissa

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